Idiopathic Intracranial Hypertension New Zealand
Our mission is to improve patient quality of life and prevent blindness from idiopathic intracranial hypertension (IIH) through education, public awareness, support and research.
New IIH Drug Trial
In Auckland, a clinical trial is available for patients NEWLY diagnosed with IIH who meet the eligibility criteria.
More information is found here
Awareness Campaigns
September is IIH Awareness Month
This year, we are hoping to raise awareness, and we need your support. If you would like to be involved, please contact us.
Our Purpose
We hope this support group brings patients together to a safe place where they can connect and support one another, informed by trusted professional health advice relevant to a NZ context. For a condition with more questions than answers, we aim to inform patients of up-to-date research and offer access to emerging treatments through clinical trials available in New Zealand. For healthcare providers we look to offer continuing education on IIH, to better inform, support and provide care for patients and whānau. Moreover, we also hope to enhance public awareness and research on this condition.
